Sandra Kays Matters of the Heart

 
Matters of the Heart is a beautiful compilation of stories that tell about the daily lives of the CHD world. Inspiring, supportive and understanding; this work is not just a must read but also provides comfort to those families who struggle daily to keep their lives together. To those families: You are not alone, we [...]

Braden’s Story

Braden Cruse Knebel arrived on December 7th, 2009. He was 7 lbs 12 oz and 19 ½ inches long. We found out Braden had multiple problems early on in the pregnancy. He had a Cystic Hygroma on his neck measuring 17 mm, an ASD, multiple pin hole VSDs, Coarctation of the Aorta and probable Noonan’s [...]

Jason’s Story

 
My son Jason Hoffman was born June 9,2009 When he was born he was blue all over. After staying at the hospital for the required 4 days we was released to go home. I knew something was wrong with him but the doctors all kept telling me he was fine just had a little jaundice [...]

Provide support to children with heart defects and their families

Goals

Improve access to support by increasing number of groups by 30%
Expand educationa materials for distribution to more than 4000 parents
Improve access to resources by creating interactive resource database
Improve awareness to decrease death rates and increase life expectancy
Improve quality of life by increasing care package distribution by 50%

Overview

Congenital Heart Defects (CHD) are the most common birth [...]

Heart Mom Pendant and Necklace Giveaway

I have purchased this neckace from http://www.etsy.com/shop/lucky10 She makes all types of items for CHD families.
I am giving away a Heart Mom Pendant to one of our Heart Moms. I know Mothers Day is coming up so I wanted to run this giveaway.
There are several ways to enter, and you can enter more than once. The [...]

CHD Car Magnet

Purchase them today at  http://kimsheartbeat.com/

Diet Coke GOES RED for heart disease! ♥

Preparing for your CHD Baby’s Open Heart Surgery

I came across this great article that was posted by CHDbabies It will be very helpful to those that have CHD babies going in for Surgery. Thank you so much for writing this article.
Heart defects come in all types, from minor to major. Defects can occur inside the heart or in the large blood vessels outside [...]

Rylie’s Journey with HLHS

Prayers for Abigail

Please pray for Abigail. 
She will be going to see a pulmonologist soon. The cardiologist says she should be put on some oxygen for a while to lower the pressures in her lungs while we wait for her heart to be repaired. If we dont do this, he says we will likely do permanent damage to [...]