Posted in CHD Support on 08. Feb, 2011
I have purchased this neckace from http://www.etsy.com/shop/lucky10 She makes all types of items for CHD families. I have also done this giveaway in the past. I am giving away a Heart Mom Pendant to one of our Heart Moms. There are several ways to enter, and you can enter more than once. The more you enter, [...]
Posted in Jenna's Story on 18. Jan, 2011
On January 16th, our little girl, Jenna Jean Ripple came into the world. Immediately the doctor noticed something wasn’t quite right with Miss Jenna. She was looking a little blue, and when they got her hooked up to the O2 monitor, they noticed her SPO2 was not normal. They then placed her on oxygen, and [...]
Posted in News & Events on 17. Sep, 2010
At 2:40 eastern time today, the national committee on newborn screening voted to YES to recommend pulse oximetry screening for critical congenital heart disease be added to the newborn screening uniform panel. Annamarie Saarinen founder of 1in100 has been hard at work in Washington D.C. at Senate Hearing Committees and the like testifying, providing study [...]
Posted in News & Events on 27. Aug, 2010
I will be posting more stories of our heart friends. I would love to get your CHD child’s story posted. Please email me at erinkewer@comcast.net if you would like your story posted.
Posted in News & Events on 02. Jun, 2010
Matters of the Heart is a beautiful compilation of stories that tell about the daily lives of the CHD world. Inspiring, supportive and understanding; this work is not just a must read but also provides comfort to those families who struggle daily to keep their lives together. To those families: You are not alone, [...]
Posted in Braden's Story, CHD Stories on 18. May, 2010
Braden Cruse Knebel arrived on December 7th, 2009. He was 7 lbs 12 oz and 19 ½ inches long. We found out Braden had multiple problems early on in the pregnancy. He had a Cystic Hygroma on his neck measuring 17 mm, an ASD, multiple pin hole VSDs, Coarctation of the Aorta and probable Noonan’s [...]
Posted in CHD Stories, Jason's Story on 18. May, 2010
My son Jason Hoffman was born June 9,2009 When he was born he was blue all over. After staying at the hospital for the required 4 days we was released to go home. I knew something was wrong with him but the doctors all kept telling me he was fine just had a little [...]
Posted in CHD Support on 20. Apr, 2010
Goals Improve access to support by increasing number of groups by 30% Expand educationa materials for distribution to more than 4000 parents Improve access to resources by creating interactive resource database Improve awareness to decrease death rates and increase life expectancy Improve quality of life by increasing care package distribution by 50% Overview Congenital Heart [...]
Posted in News & Events on 20. Apr, 2010
I have purchased this neckace from http://www.etsy.com/shop/lucky10 She makes all types of items for CHD families. I am giving away a Heart Mom Pendant to one of our Heart Moms. I know Mothers Day is coming up so I wanted to run this giveaway. There are several ways to enter, and you can enter more than [...]
Posted in News & Events on 20. Apr, 2010
Purchase them today at http://kimsheartbeat.com/
Spreading CHD Awareness was created to help spread awareness about CHD (Congenital Heart Defects). My youngest daughter was born (2005) with four heart defects. We did not know that she had any heart defects until after she was born. We need to spread the awareness to moms and dads to be and also families out there that might not know about their child's heart.
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