Posted in Braden's Story, CHD Stories on 18. May, 2010
Braden Cruse Knebel arrived on December 7th, 2009. He was 7 lbs 12 oz and 19 ½ inches long. We found out Braden had multiple problems early on in the pregnancy. He had a Cystic Hygroma on his neck measuring 17 mm, an ASD, multiple pin hole VSDs, Coarctation of the Aorta and probable Noonan’s [...]
Posted in CHD Stories, Jason's Story on 18. May, 2010
My son Jason Hoffman was born June 9,2009 When he was born he was blue all over. After staying at the hospital for the required 4 days we was released to go home. I knew something was wrong with him but the doctors all kept telling me he was fine just had a little [...]
Posted in Bradley's Story, CHD Stories on 06. Apr, 2010
Ten little fingers, ten little toes, that is what each Mother counts when a child is born. For those of us who have been through trips to NICU before, we even listen to hear the Apgar Score. When my son was born, my first thoughts were “Wow, he is huge.” My giant lug of [...]
Posted in Aoife's Story on 23. Mar, 2010
Aoife’s Story The Pregnancy: It was September, 2008. I was 8 months pregnant with my 3rd child. Everyone was so excited about the upcoming birth of the baby. I was on my way to Savannah for genetic counseling. When my ob/gyn informed me that all women over 35 had to undergo genetic counseling, I was [...]
Posted in Abigail's Story, CHD Stories on 22. Mar, 2010
Abigail’s story is quite a lengthy one. Going back to the pregnancy with her, the doctor’s office done my tri- screening to test for chromosomal abnormalities. It came back with the results that she may be born with Trisomy18. This is a defect similar to down syndrome but in the 18th chromosome instead. It is [...]
Posted in CHD Stories, Cora's Story on 09. Mar, 2010
Cora died in my arms suddenly and unexpectedly while breastfeeding December 6. She was only five days old and was born November 30 just a few days before her December 4 due date. One moment I looked down and saw her peaceful face growing sleepy from breastmilk. A matter of seconds later, and I looked [...]
Posted in Aidens Story, CHD Stories on 05. Mar, 2010
..was conceived in January of 2009. He’s my 1st child and he’s (if you can’t tell) a boy. The feeling of a man having a son is one of extreme joy and a unique feeling I can’t quite describe, but it feels so good. I can remember letting my mind run every chance I got.. [...]
Posted in CHD Stories, Phoenix Francis on 03. Mar, 2010
On May 7, 2006 Phoenix Francis was born with a condition called Hypoplastic Left Heart Syndrome. Phoenix was scheduled to receive a heart transplant at birth but plans quickly changed when Phoenix became very sick and it appeared that a donor heart would not become available in time to save his precious life. Phoenix was [...]
Posted in CHD Stories, Olivia's Story on 03. Mar, 2010
It was one of those pregnancies that you just have a feeling something is just not right. I was pregnant with my third child. Since it was going to be my last child. We decided to go have a 3-D sono done for memories. It was amazing. You could see all the features on her [...]
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