National Wear Red Day

On Feb 3rd is National Wear Red Day. Here are a few pictures of the ones that wore red!

NY Ink Episode featuring story on HLHS

http://www.youtube.com/watch?v=AzPjUhkB1pY&feature=youtube_gdata_player

Congenital Heart Defects on CNN

Congenital Heart Defects was on CNN. Kristine Brite McCormick’s daughter. Cora passed from her CHD at five days old. She went home undiagnosed. CNN has been airing a story since early this morning of why mandatory screening for heart defects is so important. They are supposed to be airing it all weekend so try to [...]

Pulse OX U.S. National Screening: DONE

At 2:40 eastern time today, the national committee on newborn screening voted to YES to recommend pulse oximetry screening for critical congenital heart disease be added to the newborn screening uniform panel. Annamarie Saarinen founder of 1in100 has been hard at work in Washington D.C. at Senate Hearing Committees and the like testifying, providing study [...]

Catching Up

I will be posting more stories of our heart friends. I would love to get your CHD child’s story posted. Please email me at erinkewer@comcast.net if you would like your story posted.

Sandra Kays Matters of the Heart

  Matters of the Heart is a beautiful compilation of stories that tell about the daily lives of the CHD world. Inspiring, supportive and understanding; this work is not just a must read but also provides comfort to those families who struggle daily to keep their lives together. To those families: You are not alone, [...]

Heart Mom Pendant and Necklace Giveaway

I have purchased this neckace from http://www.etsy.com/shop/lucky10 She makes all types of items for CHD families. I am giving away a Heart Mom Pendant to one of our Heart Moms. I know Mothers Day is coming up so I wanted to run this giveaway. There are several ways to enter, and you can enter more than [...]

CHD Car Magnet

Purchase them today at  http://kimsheartbeat.com/

Diet Coke GOES RED for heart disease! ♥

Congenital heart defects in children

Symptoms By Mayo Clinic staff Serious congenital heart defects usually become evident during the first few hours, days, weeks and months of life. Signs and symptoms could include: Loss of healthy skin color Pale gray or blue skin color (cyanosis) Swelling in the legs, abdomen or areas around the eyes Shortness of breath during feedings, [...]