National Wear Red Day
Posted in News & Events on 04. Feb, 2012
On Feb 3rd is National Wear Red Day. Here are a few pictures of the ones that wore red!
Posted in News & Events on 04. Feb, 2012
On Feb 3rd is National Wear Red Day. Here are a few pictures of the ones that wore red!
Posted in News & Events on 04. Feb, 2012
http://www.youtube.com/watch?v=AzPjUhkB1pY&feature=youtube_gdata_player
Posted in News & Events on 04. Feb, 2012
Congenital Heart Defects was on CNN. Kristine Brite McCormick’s daughter. Cora passed from her CHD at five days old. She went home undiagnosed. CNN has been airing a story since early this morning of why mandatory screening for heart defects is so important. They are supposed to be airing it all weekend so try to [...]
Posted in News & Events on 17. Sep, 2010
At 2:40 eastern time today, the national committee on newborn screening voted to YES to recommend pulse oximetry screening for critical congenital heart disease be added to the newborn screening uniform panel. Annamarie Saarinen founder of 1in100 has been hard at work in Washington D.C. at Senate Hearing Committees and the like testifying, providing study [...]
Posted in News & Events on 27. Aug, 2010
I will be posting more stories of our heart friends. I would love to get your CHD child’s story posted. Please email me at erinkewer@comcast.net if you would like your story posted.
Posted in News & Events on 02. Jun, 2010
Matters of the Heart is a beautiful compilation of stories that tell about the daily lives of the CHD world. Inspiring, supportive and understanding; this work is not just a must read but also provides comfort to those families who struggle daily to keep their lives together. To those families: You are not alone, [...]
Posted in News & Events on 20. Apr, 2010
I have purchased this neckace from http://www.etsy.com/shop/lucky10 She makes all types of items for CHD families. I am giving away a Heart Mom Pendant to one of our Heart Moms. I know Mothers Day is coming up so I wanted to run this giveaway. There are several ways to enter, and you can enter more than [...]
Posted in News & Events on 20. Apr, 2010
Purchase them today at http://kimsheartbeat.com/
Posted in News & Events on 06. Apr, 2010
Symptoms By Mayo Clinic staff Serious congenital heart defects usually become evident during the first few hours, days, weeks and months of life. Signs and symptoms could include: Loss of healthy skin color Pale gray or blue skin color (cyanosis) Swelling in the legs, abdomen or areas around the eyes Shortness of breath during feedings, [...]