Catching Up

I will be posting more stories of our heart friends. I would love to get your CHD child’s story posted. Please email me at erinkewer@comcast.net if you would like your story posted.

Sandra Kays Matters of the Heart

  Matters of the Heart is a beautiful compilation of stories that tell about the daily lives of the CHD world. Inspiring, supportive and understanding; this work is not just a must read but also provides comfort to those families who struggle daily to keep their lives together. To those families: You are not alone, [...]

Heart Mom Pendant and Necklace Giveaway

I have purchased this neckace from http://www.etsy.com/shop/lucky10 She makes all types of items for CHD families. I am giving away a Heart Mom Pendant to one of our Heart Moms. I know Mothers Day is coming up so I wanted to run this giveaway. There are several ways to enter, and you can enter more than [...]

CHD Car Magnet

Purchase them today at  http://kimsheartbeat.com/

Diet Coke GOES RED for heart disease! ♥

Congenital heart defects in children

Symptoms By Mayo Clinic staff Serious congenital heart defects usually become evident during the first few hours, days, weeks and months of life. Signs and symptoms could include: Loss of healthy skin color Pale gray or blue skin color (cyanosis) Swelling in the legs, abdomen or areas around the eyes Shortness of breath during feedings, [...]

Congenital Heart Future’s Act Update

I found some information floating around some of the Heart Groups on Facebook. I wanted to keep everyone updated on the Congenital Heart Act. “We want to share some exciting news with you-the passing of the Congenital Heart Futures Act (CHFA). On Sunday, the House of Representatives passed H.R. 3590, The Patient Protection and Affordable [...]

New program aims to detect heart defects

TAMPA – There’s a new test for Hillsborough County High School students where absolutely no studying is required. Plant High School in Tampa is one of several that will now be participating in the new ‘SafeBeat’ program. “It’s a very simple test that is non-invasive,” said Dr. Gul Dadlana, a pediatrician at All Children’s Hospital. [...]

The All Too Short Life of Riley

Posted by 1in100 Many of us with kids at U of M Amplatz over the past year or two knew Riley and his family. Such a terrible loss, yet he continues to inspire the best in people. We know he is rockin’ the mohawk in heaven: http://www.startribune.com/video/87664522.html

Look At You Now – Vanderbilt Childrens & O’Shea

  I had to post this video.. I really love it!!